Fabryconnect.com is intended for United States residents only.
Use our interactive Fabry Disease Discussion Driver tool to help organize your thoughts and questions for your next appointment.
The interactive Fabry disease family tree builder can help you identify other family members who may be at risk for Fabry disease.
Visit our YouTube channel for videos with useful information and resources to help manage the daily challenges of living with a rare, genetic disease.
Recognize the signs & symptoms of Fabry disease using our interactive Fabry disease symptom tool.
Learn about the genetics of Fabry disease, including what causes it, how it is passed from mothers and fathers, how it affects the body, and more.
A guide designed to help you keep track of different tests used to monitor Fabry disease.
Learn about some of the unique effects Fabry disease can have on a woman’s body and quality of life.
This fact sheet outlines how and where people with Fabry might experience pain
Gastrointestinal symptoms are very common in people living with Fabry disease
Understand how hearing impairment may occur in Fabry disease, ways to identify it, and potential treatment and methods to manage it
There are many Fabry disease-related support and education groups. They can help you learn more about Fabry disease, connect you to others with the disease, and keep you updated about the latest developments in Fabry disease. Click on the links below to visit some of these sites.
This organization is committed to raising awareness about Fabry disease and its symptoms. It provides support and encouragement to patients and their families.
Learn about Fabry disease-related programs and projects, take advantage of the various resources available through the site, and get the latest information about living with and managing Fabry disease.
Learn about Fabry disease-related programs and projects, take advantage of the various resources available, and get the latest information about living with and managing Fabry disease.
There are many Fabry disease-related Facebook groups dedicated to helping Fabry patients. Here are some active groups:
National Institutes of Health (NIH)
Get the latest information about treatment, clinical trials, publications, and Fabry-related organizations and support groups.
Genetic Alliance
Learn about the many ways genetics plays a part of your life and learn more about Fabry disease.
National Organization for Rare Disorders (NORD)
This website provides information for patients and their families, help with medication access, and opportunities to connect with others and to get involved.
Global Genes: Allies in Rare Diseases
Global Genes is a nonprofit organization on a mission to connect, empower and inspire the rare disease community.
Show your support for others living with Fabry disease. Select as many images as you like and share them through your social media.