There's nothing quite like the feeling of being part of a group that understands and supports you.

Get advice on advocating for yourself in the workplace

Mollie wants to be perceived as an equal in her corporate world, so she speaks up for herself and others. See how.


Others fuel me to get out there and share my story.


Learn how to raise awareness for this rare disease

Courtnay walked from the East Coast to the West Coast in the Fabry’s Walkabout and became a role model through social media.


Don’t let Fabry set your limits.


See ways to involve family in management

Cheryl, a longtime supporter for the newly diagnosed, and her daughter Michelle talk about their daily lives with Fabry.


My mom has taught me to fight for myself.


Find inspiration from a Fabry family

When Michael, the father figure, and his daughter were diagnosed with Fabry, the entire family was at a loss for what to do next—until they learned to unite together.


Because you can’t do this alone, we support each other.

A Fabry family

Rare, but not alone: Fabry disease support groups are ready to help

Fabry Support & Information Group-Logo

Fabry Support & Information Group

Raises awareness of Fabry disease and provides support to patients and their families.

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National Fabry Disease Foundation-Logo

The National Fabry Disease Foundation

Organizes Fabry disease-related programs and shares updated info on Fabry management.

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Fabry International Network-Logo

Fabry International Network (FIN)

Provides information about living with Fabry disease and runs Fabry projects.

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Facebook Groups & Pages

Help those with Fabry to actively connect online.

Create more connections

Share FabryConnect resources

See Resources

Join the Community

Get the latest information about Fabry disease.

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