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Dear Fabry Community,
During this challenging time with the global COVID-19 outbreak, it is all the more important we look out for and support one another. Your safety and welfare and that of your families always has been and continues to be Amicus' number one priority. Our commitment to the rare disease community will continue and we are only a phone call or email away. For questions or support, we can be reached at [email protected] or toll-free in the US at 1(866) 9-AMICUS (926-4287). NP-NN-ALL-00030520

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About FabryConnect.com

Sponsored by Amicus Therapeutics

At Amicus Therapeutics, Inc we try to make all our decisions as if we were living with a rare disease or were caring for someone who is. We ask ourselves "what would be important to me" if I was a person living with Fabry disease? What would be a meaningful advancement or a risk I would take?

To that end, we:

  • Listen and learn from individuals and their families affected by these diseases;
  • Search for new and better therapies;
  • Incorporate patient input into the design of clinical trials for those therapies as our research advances through the drug development process; and
  • Provide useful information and resources to help manage the daily challenges of living with a rare, genetic disease.

Amicus Therapeutics is a global biotechnology company at the forefront of advanced therapies to treat a range of serious rare diseases.

Ways to Connect & Share

Join the Community

This website will be updated often with new stories about people living with Fabry disease, answers to your Fabry questions, and Fabry resources

Share Your Story

Your story can be a source of inspiration and education for other members of the FabryConnect community—and another person’s story can be helpful for you

Propose a New Fabry Disease Topic

Have an interesting topic about Fabry disease? We’ll do our best to give you the answers you’re looking for through short videos. Our goal is to answer the questions that matter most to the Fabry community.